🚨 Help Save Maria Alice's Life 👏

🚨 Maria Alice Needs Your Help to Afford the World's Most Expensive Medicine!

On September 13, 2024, my daughter Maria Alice was diagnosed with a rare condition known as Spinal Muscular Atrophy (SMA) Type 2. This genetic disease affects approximately 1 in every 10,000 children.

🎯 The Goal: $321,000

We urgently need to raise around $321,000. To date, we have managed to raise over $562,000 through partner NGOs, but the total cost of the treatment is approximately $963,000. Exactly $321,000 remains to secure Zolgensma — the world's most expensive medicine — and give my daughter Maria Alice a fighting chance against this neuromuscular disease. It is critical that Maria receives this treatment before she turns 5 years old.

💔 Eduardo's Story

My name is Eduardo. I first suspected something was wrong after my daughter's 1st birthday, when she couldn't sit up alone, crawl, stand, or support weight on her legs. Shortly after, she lost her ability to walk entirely.

✨ Maria Alice is my first and only daughter. She was completely alert and happy, despite losing those movements. I knew something was wrong when she began turning away food despite being hungry — I later realized she was struggling to swallow. Eating less made her weaker and thinner.

After extensive testing, the diagnosis came: SMA. It is an extremely fatal disease. Roughly 68% of children do not survive past age 2, and 84% do not reach age 4. She was hospitalized when she could no longer feed and began choking even on liquids. Doctors placed a nasogastric feeding tube. Curious as she was, she tried pulling at the tube in the beginning.

After several days, she was discharged and began adapting to the tube. Many people stare or make cruel comments, but we learned to ignore them. What matters is that she is alive, strong, and never stops smiling. Every day she teaches us the true meaning of strength.

💊 How Zolgensma Works

Zolgensma can stop the progression of SMA, but it must be administered before irreversible damage occurs. It replaces the function of the SMN1 gene, which is responsible for motor neuron survival. Without government funding or celebrity backing, I decided to bring our story online in hopes of finding compassionate people who can help us.

We will share continuous updates throughout this entire journey.
🙏 Thank you for listening to us • 💙 Thank you for believing • 🤝 Thank you for helping Maria Alice